Opportunities and challenges for advance care planning in strongly religious family-centric societies: a Focus group study of Indonesian cancer-care professionals
Penulis/Author
dr.Diah Martina, Sp.PD (1); Christina Yeni Kustanti (2); Rahajeng Dewantari (3); Prof. Dr. dr. Noorwati Sutandyo, Sp.PD. KHOM. FINASIM (4); Rudi Putranto (5); Hamzah Shatri (6); Agnes van der Heide MD, PhD (7); Prof. Dr. Christantie Effendy, S.Kp., M.Kes. (8); Judith A. C. Rietjens (9); Carin van der Rijt (10)
Tanggal/Date
22 2022
Kata Kunci/Keyword
Abstrak/Abstract
Background: Most studies on advance care planning in Asia originate in high-income Asian countries. Indonesia is
a middle-income Asian country characterized by its religious devoutness and strong family ties. This study aims to
explore the perspectives and experiences of Indonesian healthcare professionals on advance care planning for cancer
patients.
Methods: Focus-group discussions were conducted in July and August 2019 and were analysed using thematic
content analysis enhanced by dual coding and exploration of divergent views. Purposive sampling of physicians and
nurses actively engaged in cancer care in a national cancer centre and a national general hospital.
Results: We included 16 physicians and 16 nurses. These participants were open to the idea of advance care planning. We further identifed four aspects of this planning that the participants considered to be important: 1) the
family’s role in medical decision-making; 2) sensitivity to communication norms; 3) patients’ and families’ religious
beliefs regarding the control and sanctity of life; and 4) the availability of a support system for advance care planning (healthcare professionals’ education and training, public education, resource allocation, and formal regulation).
Participants believed that, although family hierarchical structure and certain religious beliefs may complicate patients’
engagement in advance care planning, a considerate approach to involving family and patients’ religious perspectives
in advance care planning may actually facilitate their engagement in it.
Conclusion: Indonesian healthcare professionals believed that, for culturally congruent advance care planning in
Indonesia, it was essential to respect the cultural aspects of collectivism, communication norms, and patients’ religious beliefs
Rumpun Ilmu
Ilmu Keperawatan
Bahasa Asli/Original Language
English
Level
Internasional
Status
Dokumen Karya
No
Judul
Tipe Dokumen
Aksi
1
Opportunities and challenges for advance care planning in strongly religious family-centric societies a Focus group study of Indonesian cancer-care professionals.pdf