ACADSTAFF UGM
| Judul/Title | Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study |
| Penulis/Author | Prof. Dr. Christantie Effendy, S.Kp., M.Kes. (1) ; Deby Kristiani Uligraff (2); Selvia Harum Sari (3); Fany Angraini (4); Lynna Chandra (5) |
| Tanggal/Date | 7 2022 |
| Kata Kunci/Keyword | |
| Abstrak/Abstract | Abstract Background: Caring for children living with life-threatening and life-limiting illnesses can be challenging. Parents’ roles as the main caregivers can be complex with extensive responsibilities. The experiences of family caregivers can provide key insights into the provision of home-based Pediatric Palliative Care (PPC) for seriously ill children. This study is aimed at exploring the experiences of family caregivers of children diagnosed with cancer while receiving homebased PPC. Methods: This was a qualitative study. This study used semi-structured interviews which were audio-recorded with family caregivers of twelve children diagnosed with cancer who had received home-based PPC. The interviews were transcribed verbatim. The data were analyzed using qualitative content analysis. The reporting of the study was based on the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist. Results: Three main themes emerged: (1) The implementation of home-based PPC; (2) The benefts of home-based PPC; and (3) The family caregivers’ hopes of the home-based PPC service and their impressions of home-based PPC. The implementation of home-based PPC described the experiences of family caregivers in receiving home-based PPC provided by nurses with particular attention to the bio-psychosocial-spiritual aspects. Family caregivers experienced several benefts from the home-based PCC service, where holistic care was provided for both the patient and the family. Family caregivers shared their hopes prior to receiving support from competent health care professionals to care for their sick child at home and improve the child’s quality of life. They confrmed that these hopes were fulflled through the home-based PPC service delivered by Rachel House. Conclusions: Home-based PPC provides several benefts with a positive impact for both the children diagnosed with cancer as well as their families. Nurses involved in the home-based PPC service provide holistic care with a familycentered approach. We believe that children with terminal illnesses and their families need and deserve home-based PPC during difcult times. Keywords: Experiences, Family caregivers, Children with cancer, Home-based pediatric palliative care, Indonesia |
| Rumpun Ilmu | Ilmu Keperawatan |
| Bahasa Asli/Original Language | English |
| Level | Internasional |
| Status |